more so GREAT news (update 8)
two months later and we have a platelet count of 208! all is promising. we didn't get to see the doctor, so i'm not sure when we'll be testing him again. thanks again for everyone's support.
Lucky 7! His platelet count is 160!!!! This means he's normal and healthy. We'll have to keep an eye on him to make sure we don't see symptoms, pretty much for the rest of his life. Next blood draw isn't for 2 months! I feel so relieved and happy for him. Thanks again for everyone who was so supportive. It's been a tough time and kind words help ease the mood.
We just got the new new platelet count: 95 (normal starts at 150).
His body is healing at a normal rate for a kid his age and our next checkup isn't for another month. The doctor says Ferris can fall from 4 feet and hit his head and we'll not have to worry about brain hemorrhaging. What a funny thing to be excited about, but we are.
Here's hoping that the next month is completely uneventful!
subnote: i was totally wrong about this visit being the 6 week marker, it was actually 4 weeks so we are right on schedule
The new platelet count is 61, yay!
Our next blood test is three weeks away. Apparently this puts us at the 6 week marker where most kids his age are back to normal. We're trying to stay positive since his body is now readjusting itself w/o the medicine. We still can't travel far (unless there's a cancer treatment center nearby), but otherwise all signs point to good. :)
Well, we got the results of the Monday platelet count: 26
It went down a lot since Friday, but still not enough for him to get any medication from Children's Mercy. There's nothing we can do but monitor him. We are suppose to take him back for another recount in a week, but at this rate we will be taking him in the next couple days. Poor kid! He's not allowed to play hardly at all, for fear of new bruises. Tonight I watch him alone as my roommate goes to night class; I am terrified of the worst.
Well last night we were at the local ER because the boy had a lot of red dots and bruises that all showed up very quickly. They tested his platelets and they were down to 35 (150 is the lowest for a healthy person; last time he had 7). They don't want him to go up to the ER at Children's Mercy Hospital (they have the medication) unless his platelets drop to 20. So, we have to monitor him all weekend to make sure he doesn't bleed, bump into anything, get a fever, or get a lot more red dots. If he does, then it is back to the ER to draw more blood to check his platelets. We have an appt w/ our pediatrician on Monday to check his platelets regardless. I guess this is pretty normal, although I don't remember anyone telling me that. He could be like this for the next three months (or his life, but we hope not) if he is like other kids with this problem. They try to not give him the medicine for low platelets unless it is an emergency (below 20?) because it is really hard on a person's internal organs, especially a toddler. Just wanted to keep people updated. This is all the information I have, so I'm sorry if you have questions that I can't answer.
UPDATE 2 -
Good news! His platelet count is 187 (150 is low; 400 is high) and he is okay! He gets to go back to daycare and we're waiting to hear when his follow-up appointment is going to be. Probably, he gets more blood drawn in six weeks. He hates it, but I can't blame him. Today, we are all taking a really long nap.
Again, thank you everyone for caring.
UPDATE 1 -
it is called ITP, i was out of it and typed it wrong
it is when the healing platelettes in your body are too low to fix yourself
we got into the children's hosppital w/ his count at 7
it was a bit of a nightmare because emergency care takes a long time
they were very nice
the worst was the IV they had to put on him (and take off later)
he had terrible tremors before we left
we have to keep an eye on him for the next few days and take him back to the doctor on tuesday to see what his platelette count is and go from there
he can't bump into anything or he'll get an bruise that will be like internal bleeding
the doctors all say this isn't hereditary
we almost lost our child had we waited one more day
i'll update again as i learn more
thank you so much for all the positive energy
some of you might remember my roommate's time in the hospital w/ IPT
now my son has it and we're waiting for the doctor to tell us if the children's hospital will take him
more news as available
please send good thoughts